TTP treatment
Goals of TTP treatment
There are 3 main goals when treating TTP
Prevent dangerous blood clots.
Replace ADAMTS13 in the blood.
Stop the immune system from
attacking ADAMTS13.
Once treatment starts in the hospital, most people usually start to feel better in a few days. Make sure to discuss treatment options with your care team to help get your platelet number back to normal as soon as possible.
Remember, it is important to continue any treatment recommended by your doctor after you leave the hospital, even if you feel better. Finishing your full treatment course is key to achieving full recovery.
“My hope for the future is that one day there will be a cure for TTP and also, in the meantime, that every patient that has TTP gets treated quickly and efficiently.”
—Saida, living with TTP
How TTP is treated
Because TTP is rare, some healthcare providers might treat only a few people with TTP during their careers. Because of this, TTP experts have created treatment guidelines to help other professionals.1
A worldwide team of TTP experts called the International Society on Thrombosis and Haemostasis (ISTH) has created treatment guidelines for TTP
The guidelines are written for healthcare providers, but they are available to everyone.
Get helpful tips for talking to your care team about expert-recommended treatments, including questions to ask.
You are your best advocate and your doctor is your best ally. Talk openly about your treatment and don’t stop treatment without talking to your doctor.
What happens after the hospital?
TTP can be managed, but it’s important to watch out for episodes.
Reference: 1. Zheng XL, Vesely SK, Cataland SR, et al. ISTH guidelines for the diagnosis of thrombotic thrombocytopenic purpura. J Thromb Haemost. 2020;18(10):2486-2495. doi:10.1111/jth.15006