Support for TTP
Find support and community through others living with TTP
The following groups can help connect you or your loved one with others who have TTP.*
“I think connecting with other people who have TTP can be really empowering. It can make you feel less lonely.”
—Jo, living with TTP
Answering T.T.P. Foundation
A Canadian TTP advocacy and support group for all people living with TTP, caring for someone with TTP, or treating TTP.
TTPNetwork
A TTP charity and support group in the United Kingdom for all people living with TTP, caring for someone with TTP, or treating TTP.
AOFAC Foundation
A patient advocacy group and charity organization from the UK with presence in US and Africa, raising awareness of TTP, providing education and support to people living with TTP and their families, caregivers, and healthcare workers, with the goal of reducing mortality and enhancing quality of life.
Ree Wynn Foundation
A foundation in the United States whose mission is to provide education and promote awareness of TTP to reduce mortality and enhance quality of life for those living with TTP.
Britt Balser Foundation
A foundation in the United States whose mission is to provide support to doctors and medical centers researching TTP.
Orphanet
A unique resource for gathering and improving knowledge of rare diseases.
EURORDIS
A European non-governmental patient-driven alliance of patient organizations representing 1000 rare disease patient organizations across 74 countries.
National Organization for Rare Disorders (NORD)
A patient advocacy organization dedicated to people with rare diseases and the organizations that serve them.
Global Genes
A global community dedicated to helping patients affected by rare disease find and build communities, gain access to information and resources, and become effective advocates.
Note that the opinions expressed by the organizations above do not necessarily reflect the views of Sanofi. Sanofi does not maintain and is not responsible for the content of communications for the listed organizations or their websites. This is not intended to be a comprehensive list of aTTP disease support organizations. These listings do not constitute an endorsement by Sanofi of information provided by any other organizations.
*Sites and organizations are not affiliated with Sanofi.